Coordinator (adult): Mary Beth Wilbur at University Hospital Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Age Range: Children and Adults up to age 60 years. Co-Director: Joyce Y. Wu, MD Clinic Frequency: Appointments are scheduled as needed. Co-Director: Marvin Miller, MD The TSC Alliance is in the process of phasing in new TSC Clinic Standards. Director: To be announced. Clinic Frequency: Weekly on Wednesdays For the fifth time, The Leapfrog Group has recognized us as a Top Childrens Hospital for safe, quality care. For Clinic information and to schedule an appointment call +91 11-43033333. Coordinator: Melissa Calzada, MD Coordinator: Heather Ausby, BHA, BSN, RN Dr. Porter and Dr. For more information about the clinic call (901) 287-4547. Stephen Pautler and Patrick Luke (urology); Dr. Marco Mura (respirology); Dr. Wei Jing Loo (dermatology); Drs. Director: Tal Giboa, MD The TSC Clinic at Monroe Carell, Jr. Childrens Hospital at Vanderbilt Louisville Age Range Seen: Children and young adults up to age 21 years. Stanford To schedule an appointment call Ashley Hamilton at (248) 551-6355. University of Utah TS Clinic Hotels. Coordinator: Katie Knaebe, RN, BSN Coordinator: Stacey Miller, LPN When you call the listed number for clinic information, please be sure to tell them you or your child has TSC, then specify you want to make an appointment with the doctor who is listed as the Director/Co-Director. Age Range Seen: Children (0-17) and adults (18+) WebLoma Linda University Medical Center. Out-of-State Medicaid Policy: Accepts all that get to them. For further questions regarding these programs contact Financial Services at (513) 636-0201. Age Range Seen: New patients under age 16 years TAND Unit Director: Tanjala T. Gipson, MD Director: Shelley Williams, MD For clinic information and to schedule an appointment, call (312) 996-7865. Columbus Director: Joao Garcia, MD For Clinic information and to schedule an appointment call +91 95-50876540, Mumbai, Maharashtra Akron For Clinic Information and to schedule an appointment call +52 8183483704. Age Range Seen: Children and Adults Pediatric Clinic Frequency: Weekly every Wednesday morning. Atrium Healthcare TSC Clinic at Levine Childrens Hospital TSC Clinic at Dayton Childrens Hospital TSC Clinic at Nationwide Childrens Hospital Director: Rohini Coorg, MD Age Range Seen: Children and Adults Please call or email Twyla Peoples to schedule an appointment (919-843-1529,twyla.peoples@cidd.unc.edu). Cleveland Administrative Coordinator: Erica Sierra Co-Director: Elena Gonzalez, PNP, MSN The UF Health Tuberous Sclerosis Center TSC Clinic at Nemours/duPont Hospital for Children TSC Multidisciplinary Clinic at Rady Childrens Hospital San Diego For information or to schedule an appointment call (512) 628-1855. Coordinator: Lorna Justesen, RN, BSN To schedule an appointment, call (858) 966-5819. Age Range Seen: Children and Young Adults up to age 25 years old To schedule an appointment call the Helen DeVos Childrens Hospital Welcome Center at 616-267-2500. Virtual options (videoconferencing, telephone) are available. Neurology Locations Loma Linda University Faculty Medical Clinics Neurology 11370 Anderson St., Suite B100, Coordinator: Allison OMeara, NP Clinic Frequency: One full Friday per month with additional clinics added as needed. For children with TSC, schedule an appointment with Dr. Yoshii or Dr. Ahmad. Co-Director: Michael Doherty, MD Age Range Seen: Children and Adults Director: Stacie Stapleton, MD To schedule an appointment contact Sabrina Dekel at SabrinaDe@clalit.org.il or 972-8-6245469. Clinic Ambassador: Jocelyn Cenna,portvue@comcast.net McGovern Medical School, University of Texas Health Science Center at Houston Co-Director: Judith Adelizzi-Delaney, DNP, APRN Age Range Seen: Children and Adults* Clinic Frequency: First Monday P.M., second Tuesday A.M., third and fifth Tuesdays P.M. every month. Coordinator: Nicole Forster, MSc, CGC Adults who need other specialty care outside of epilepsy/neurology will be referred to other subspecialties with TSC expertise such as dermatology, genetics, urology, or pulmonology. This is the phone number for the pediatric neurology specialty clinic, which includes TSC. Age Range Seen: Children and Adults Gainesville TSC Clinic at Rainbow Babies and Childrens Hospital, University Hospitals of Cleveland Medical Center Nashville Clinic Frequency: Weekly on Thursdays. For CHOP appointments, call (215) 590-1719. Out-of-State Medicaid Policy: Some states are accepted; please contact the clinic for current policy. For clinic-related questions, please email Zo Frazier, MS, CGC at zoe.frazier@childrens.harvard.edu. For clinic information and to schedule an appointment, please call (973) 322-7042. Director: Hope Northrup, MD Birmingham Director: Donald Phillips, MD, MPH Out-of-State Medicaid Policy: Accepts any that will reimburse. Clinic Frequency: Monthly, every third Wednesday. For information and to schedule an appointment, call (352) 294-5000. TSC Clinic at Kennedy Krieger Institute Whether your child has a chronic condition such as a movement disorder or needs more urgent care for a neurological issue, our team can help. Coordinator: Jamie MacDougall, RN, BSN, CPN Clinic Frequency: Monthly, every fourth Thursday (subject to change). Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. In order to qualify as TSC Clinic or TSC Center of Excellence, a clinic must follow establishedTSC clinical consensus (treatment) guidelines developed by an international group of clinical experts, many of whom are members of the TSC Alliance Professional Advisory Board. Clinic Frequency: Weekly on Thursday at Childrens National Medical Center in Washington DC and monthly on the second Monday at the Regional Outpatient Center in Fairfax, VA. To schedule an appointment, call (434) 924-2706 and ask to speak to Caitlin Jenkins. Coordinator: Michelle Sanders, LPN Co-Director: Laurel Willig, MD Our neurology residency program provides an outstanding training program in clinical neurology. To schedule an appointment, call the scheduling secretary at (302) 651-5930. Out-of-State Medicaid Policy: Does not accept any. For information and to schedule an appointment, call (443) 923-2746 or email TSC@kennedykrieger.org. For clinic information contact Lisa Vala at lisa.vala@nemours.org. Age Range Seen:Children and Adults. Natalya Karp and Dervla Connaughton (genetics); Dr. Raymond Lee (dentistry). Coordinator: Andrew House, MD For Clinic Information call Dr. Garcia at 52-999-9490869 and to schedule an appointment, contact Alma Martinez at 52-999-9260207 or receocionneural@gmail.com. Coordinator: None TSC Clinic at Arkansas Childrens Clinic Frequency: Weekly Questions about clinic services, billing and insurance should be directed to the TSC clinic staff. Tuberous Sclerosis Center of Excellence at Le Bonheur Childrens Hospital Age Range Seen: Children and Adults For more information or to schedule an appointment, contact appointment scheduling at (407) 303-8127. Grand Rapids Age Range Seen: Children only under age 18 years. Childrens Hospital Los Angeles Tuberous Sclerosis Clinic Age Range Seen: Children and Adults Director: Vinodh Narayanan, MD *Adults will be seen for an initial diagnosis and ongoing care provided you have a primary care physician. Age Range Seen: Children up to age 18 years As the regional leader in Neurology Residency. Clinic Frequency: Monthly. For pediatric information and to schedule an appointment call (314) 454-6120 and ask for Ashley. Beer Shiva To schedule an appointment at the Adult TSC Clinic, call (720) 848-2087. Clinic Frequency: The local practice is to see patients as and when they come. Durham Northern California TSC Clinic at Lucile Packard Childrens Hospital He received his medical degree from Johns Director: Marcio Sotero de Menezes, MD For clinic information and non-urgent inquiries please call the Clinic Coordinator at (410) 448-2485. Washington, DC London Health Sciences Centre TSC Network Age Range: New patients up to age 22 years. By using this site you agree to our use of cookies. Clinic Frequency: Fourth Friday every other month as a multidisciplinary clinic. For information about the TSC Clinic or to schedule an appointment call (646) 558-0808. Director: Andy Rodriguez, MD (Adult)Co-Director: Aliza Alter, MD (Pediatric) Orlando Age Range Seen: Children and Adults Coordinator: Perla Bautista Muench, RN, BSN (Pediatric) St. Petersburg Age Range: Children and adults Tuberous Sclerosis Clinic at Childrens Mercy Hospital The TSC Alliance does not accredit any TSC Clinic or TSC Center of Excellence, and the TSC Alliance does not directly provide or guide any clinical care or medical decision-making. Clinic Frequency: Weekly on Mondays. Clinic Frequency: Monthly, the last Tuesday of the month Clinic Frequency: Weekly, half-day on Tuesday and half-day first Wednesday of each month. TSC Adult Clinic at the Centre Hospitalier de lUniversit de Montral (CHUM) TSC Clinic at Childrens Hospital of Michigan Ana Suller Marti, Michelle Lee Jones and Derek Debicki (neurology/epilepsy); Drs. Houston Coordinator: Ms. Kavita Singh Age Range Seen: New patients only under 18 years age New York City Clinic Frequency: Weekly every Wednesday all year round Age Range Seen: Adults 18 years and older. To schedule an appointment please call one of our Patient Experience Representatives at (617) 355-2711. WebGet directions, reviews and information for Loma Linda Neurology in Loma Linda, CA. Co-Director: Mary Kay Koenig, MD Clinic Frequency: Monthly, every second Thursday. Neurocutaneous Disorders Clinic at Johns Hopkins All Childrens Hospital If you or your child with TSC needs an appointment at a clinic for the first time, you might be transferred to a call center to register for a medical record number (MRN) before you are able to schedule an appointment at the TSC clinic. Director: Mary T. Silvia, MD Age Range Seen: Children and Adults For information call Paula Shock at (248) 551-6381 or Anne Marie Michon, MSN, RN, CPNP-PC at (248) 551-3940. Age Range Seen: Children and young adults up to age 21 years old. Tampa For adult care information and to schedule an appointment call 314-362-7845 and Press 2 Director: David Shahani, MD (Pediatric)Co-Director: Hamid Kadiwala, MD (Adult) Clinic Ambassador: Brittany Schwaigert, bschwaigert@gmail.com or (901) 238-7665 Faculty and residents work closely *Adults with TSC and seizures. Esta clnica cuenta con un doctor o un empleado que habla espaol con fluidez. Director: Donald Basel, MD For Urgent Appointments contact Raeann Moore, RN at 616-267-2954. Cleveland Clinic Frequency: Consistently every fifth Wednesday of the month. Co-Director: Julie Hanna, MD TAND Clinic is held at the Carolina Institute for Developmental Disabilities in Carrboro, NC on Wednesday mornings. For information about the TSC Clinic contact Nancy J. Elling, RN, BSN, CPN at (703) 635-2873. Clinic Frequency: Monthly, every second Thursday. Milwaukee The information you need. To help you choose the most appropriate TSC Clinic for your needs, please use the following screening tool: The TSC Alliance would like to know about your experience at the TSC Clinic you/your child go to for care. Age Range Seen: Children and young adults up to age 21 years old. Coordinator: Samantha Witham, BSN, RN, CPN Miami Childrens Hospital of Pittsburgh TS Clinic WebOverall Patient Satisfaction Rating. Childrens Healthcare of Atlanta Co-Director: Saba Ahmad, MD For clinic information contact Nicole Forster at (416) 586-4800 extension 2734 and to schedule an appointment contactadultgenetics@uhn.caor Tabinda Nazeer at (416) 586-4800 extension 5454. Mid-Atlantic Epilepsy and Sleep Center For Clinic Information and to schedule an appointment call (519) 663-3167. Clinic Frequency: Third and fourth Wednesday every month afternoon clinic. Age Range Seen: Children and young adults up to age 21 years. For Clinic Information contact Lindsey Rose, LPN at (502) 588-3650, extension 50212. Clinic Frequency: Monthly, first Friday. Age Range Seen: Children will be seen by Dr. Porter at Lucile Packard Childrens Hospital. Clinic Frequency: Monthly, second Tuesday and third Thursday. Download TSC Specialist List. Co-Director: Sarah Weatherspoon, MD Co-Director: Melissa Gregory, MD Dallas Co-Director: Amanda Pong, MD, MSc Clinic Frequency: Weekly. Age Range Seen: New patients up to age 21 years. WebFind the Best Neurologist near you in Loma Linda, CA . Age Range Seen: Children and Young Adults up to age 25 years old. Coordinator: Maria Bonanni, MSN, CRNP and Megan Lawrence (administrative) Director: Sita Paudel, MD AdultsMonthly, every third Thursday. Selene Jamall is a Neurologist in Loma Linda, CA. Age Range Seen: Children and Adults Administrative Coordinator: Anais Ruiz ajruiz@mednet.ucla.edu Age Range Seen: Children and Adults. For Clinic Information and to schedule an appointment call, Coordinator: Mimi Callanan, RN, MSN (Adults). Co-Director: Surya Prasadarao Rednam, MD, MS MAX Super Specialty Hospital- Patparganj For more information about the clinic contact Michelle Sanders at (803) 434-8333. TSC Center at the Columbia University Irving Medical Center/New York Presbyterian The TSC clinical consensus guidelines consist of a series of objective metrics that help measure a clinics commitment to TSC care, the availability of particular medical specialties relevant to TSC, the availability of particular educational resources and whether or not a clinic participates in clinical trials. To schedule an appointment please call (617) 726-6540. For Clinic Information and to schedule an appointment call (514) 345-6510. Age Range Seen: Children and Adults Clinic Frequency: Monthly, second and fourth Mondays. Director: Darcy Krueger, MD, PhD Director: Peter B. Crino, MD, PhD The support they need is the support you can give. WebOur Services. Livingston Age Range Seen: Children only. Clinic Frequency: Clinic practice is to see patients as they come. Coordinator: Roberta Ratelle, RN CHU Sainte-Justine, University of Montreal Coordinator:To be named Memphis To schedule an appointment, call (718) 920-4378. Director: Francis DiMario, Jr., MD Coordinator: Maria del Pilar Gennaro, MSN, ARNP, CNRN For more information or to schedule an appointment call (909) 835-1810. Clinic Ambassador: Heather Morris, Heather.Morris@atriumhealth.org Age Range: Children and Adults The Tuberous Sclerosis Clinic at Loma Linda University Health Care Co-Director:Muhammad Zafar, MD Chicago Inform the scheduler that you are calling to make an appointment to see Dr. Ashwal. Age Range Seen: Children and Adults. Coordinator: Ms. Nisha Sindra Co-Directors: E. Martina Bebin, MD, MPA and Bruce Korf, MD, PhD For Clinic Information and to schedule an appointment call (323) 361-2471. Clinic Frequency: Weekly, every Tuesday. Please email clinicconcerns@tscalliance.org or call (240) 463-7250 to report any problems you encounter with the contact information posted below. Co-Director: Joo Hee Seo, MD, MSc Director: Francis M. Filloux, MD Salt Lake City For information or to schedule an appointment call (832) 822-5046. Administrative Coordinator: Mary Jo Shirley Clinic Frequency: Appointments are scheduled as needed. Seattle Winston-Salem Clinic Frequency: Weekly Every 4thThursday afternoon. Director: James H. Tonsgard, MD Co-Director: Siddarth Shah, MD Age Range Seen: Children and Adults The TSC sub-specialists also see TSC patients most days of the week. Director: Nagma Dalvi, MD For more information about the clinic call Brooke Henry, RN, BSN, at (434) 924-8672. Orange Age Range Seen: Children and Adults* To schedule an appointment or for more information, contact Mary Crespo, RN at (714) 509-7601. Bethesda Director: John J. Bissler, MD Montefiore Medical Center Clinic Frequency: Weekly on Mondays and Tuesdays Los Angeles None of the information provided by TSC Alliance, including the identification of TSC Clinics or TSC Centers of Excellence, is intended as medical advice and should not be relied upon as a substitute for professional consultation with a qualified healthcare provider familiar with a patients medical needs. Coordinators: Melissa Branham, RN (pediatrics) and Laura Sutherland, RN (adults) For Clinic Information call (414) 266-2935 and to schedule an appointment call (414) 266-3347. Meet Us. Age Range Seen: Children and Adults. To schedule an appointment for your child at the Childrens Hospital, please call (720) 777-6895. Age Range Seen: New patients up to age 25 years. Namath S. Hussain is a neurosurgeon in Loma Linda, California and is affiliated with Loma Linda University Medical Center. Age Range Seen: Children and Adults For Clinic Information and to schedule an appointment call (704) 403-2786. Director: Pavel Klein, MD Orlando Health Arnold Palmer Hospital for Children To schedule an appointment, call the TSC Center at (212) 342-1036. For information and to schedule an appointment, call (717) 531-8790.